Recently diagnosed with ocd

[h18Participant]

I’m new to this after being diagnosed in my mid 20s, after living with this since I was 18. I had got use to life like this and was living a relatively normal life, and was in a really good place last year where I would rarely have intrusive thoughts that would bother me, or they would be there and I never really gave them the time of day.

until recently my mind revisited something from my childhood which had never previously bothered me and a I would go as far as saying I forgot about it. Now it is in my head every day saying I’m this terrible person and makes me feel like these intrusive thoughts are more powerful and convince me they are genuine, have been depressed for the past few months and constantly think everyday that this world is not for me anymore, and I would rather not be around.
questioning whether there is any hope it will get better as has been 4 months of every single day and I little or no sign that this will pass.

[Forum Moderators]

Hi:

Forum moderators here; thanks for posting and we’re sorry you haven’t had many replies yet. Please don’t take this personally or ever think you’re alone – if you look at the forums, you can read other users’ topics that are similar to yours.

You can also contact the OCD Action Helpline and Email Service to talk to or email someone who understands OCD.

Our Helpline volunteers provide confidential information and support for people with OCD (and anyone who thinks they may have OCD). Most volunteers have personal experience of OCD; all understand how it can impact your entire life. Contact our Helpline by:

• phone: 0300 636 5478
• email: support@ocdaction.org.uk

Support groups offer a safe place where you can talk openly about your OCD and support other people too. Our information about UK-based groups can be found here:

• Local independent support groups: https://ocdaction.org.uk/i-need-support/local-support/
• OCD Action Skype/Phone/Zoom support groups: https://ocdaction.org.uk/i-need-support/ocd-action-skype-phone-zoom-support-groups/

If you don’t live in the UK, look for groups near you on the International OCD Foundation (IOCDF) website. Under “Find Help” select “Listing Types” and “Support Groups”: https://iocdf.org/

And please remember that you’re not alone – OCD Action is here to support you.

Forum Moderators

Hi:

Forum moderators here; thanks for posting and we’re sorry you haven’t had many replies yet. Please don’t take this personally or ever think you’re alone – if you look at the forums, you can read other users’ topics that are similar to yours.

You can also contact the OCD Action Helpline and Email Service to talk to or email someone who understands OCD.

Our Helpline volunteers provide confidential information and support for people with OCD (and anyone who thinks they may have OCD). Most volunteers have personal experience of OCD; all understand how it can impact your entire life. Contact our Helpline by:

• phone: 0300 636 5478
• email: support@ocdaction.org.uk

Support groups offer a safe place where you can talk openly about your OCD and support other people too. Our information about UK-based groups can be found here:

• Local independent support groups: https://ocdaction.org.uk/i-need-support/local-support/
• OCD Action Skype/Phone/Zoom support groups: https://ocdaction.org.uk/i-need-support/ocd-action-skype-phone-zoom-support-groups/

If you don’t live in the UK, look for groups near you on the International OCD Foundation (IOCDF) website. Under “Find Help” select “Listing Types” and “Support Groups”: https://iocdf.org/

And please remember that you’re not alone – OCD Action is here to support you.

Forum Moderators

[Forum Moderators]

Hi:

Forum Moderators here – just checking in, as it’s been a while since we replied to your topic.

We want to be sure you know that, in addition to contacting the OCD Action Helpline and Email Service, you can visit our website’s Resources page: https://ocdaction.org.uk/resources/

You’ll find lots of helpful web-based resources on topics such as:

• An introduction to OCD
• Assessment and Diagnosis
• Cognitive Behavioural Therapy with Exposure and Response Prevention
• Funding specialist treatment
• Getting a Yes from the NHS
• Good Quality CBT with ERP
• I am a parent of a young child
• Making the Most of Therapy
• Medication for OCD
• Obsessive-Compulsive Disorder
• Preparing for a GP Appointment
• Primary Care for Adults
• Reassurance seeking
• Secondary Care for Adult
• Student Space: Management and Keeping Well
• Support at University
• Support for Families and Carers
• Treatment Options
• Treatments Not Recommended for OCD
• What to Look for in a Therapist
• Your Journey through the NHS

[Forum Moderators]

Hello:

We’d also like you to know about this additional support OCD Action offers for you.

OCD Action Support Groups

Online Support Groups:

• Provide a safe and welcoming environment
• Allow you to connect with others and offer mutual support without judgement
• Are all peer led, assisted by a team of trained volunteers.

Who can join?

Anyone based in the UK and living with and/or affected by OCD or a related condition including:

• People who have these conditions, whether diagnosed or not
• Their parents, caregivers, partners and loved ones
• Students aged up to 25 in college / university/ other educational institutions
• Young people aged 16 – 17
• Young people aged 18 – 25

Types of groups

OCD Action offers specialised groups including:

• Pure O – General\Pure O – Intrusive Harm Thoughts
• Pure O – Scrupulosity & Morality
• Checking OCD
• Contamination OCD
• Perinatal OCD
• LGBTQ+ OCD
• Men’s OCD
• OCD for People of Colour
• BDD
• OCD & Autism
• OCD & Hoarding

What important details do I need to know?

• You can sign-up to a maximum of two groups initially. After attending at least once, you’re welcome to sign-up to another group
• Participation is easily accessible via Zoom, or
• If you don’t have internet access, we have a few phone support group places
• There is no charge to join
• Because of the high demand, please only sign up if you intend to use your place(s)
• To retain membership, you must attend a session at least once every three months

What are Navigating Services sessions?

As a Support Group member, you’ll be automatically be invited to monthly Navigating Services Sessions. Attendance is optional, and you’re free to opt out of the session mailing list at any time.

Led by our Helpline team, these sessions include:

• Information and support on accessing recommended treatments through the NHS and/or privately
• Opportunities to share lived experience of accessing support (for attendees or others)
• Answers to questions/concerns regarding recommended treatments and/or service provision

Want to know more about Support Groups?

For more information before you sign up:

• Email sign-up@ebtsupportgroups.co.uk
• Call 020 7253 5272
• See our website: https://ocdaction.org.uk/online-support-groups/

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