some ideas

[VE11Participant]

People have some ideas about my son’s ocd that are just plain wrong. How can I correct them?

[Forum Moderators]

Forum moderators here:

Thanks for posting on the forums; please remember that you can also contact the OCD Action Helpline and Email Service to talk to or email someone who understands OCD.

Our Helpline volunteers provide confidential information and support for people with OCD (and their families, friends and carers too). Most volunteers have personal experience of OCD; all understand OCD and how it can impact your entire life – and the lives of people close to you. Contact our Helpline by:

– phone: 0300 636 5478
– email: support@ocdaction.org.uk

Best wishes,

Forum Moderators

[Forum Moderators]

Hi:

Forum Moderators here – just checking in, as it’s been a while since we replied to your topic.

We want to be sure you know that, in addition to contacting the OCD Action Helpline and Email Service, you can visit our website’s Resources page: https://ocdaction.org.uk/resources/

You’ll find lots of helpful web-based resources on topics such as:

• An introduction to OCD
• Assessment and Diagnosis
• Cognitive Behavioural Therapy with Exposure and Response Prevention
• Funding specialist treatment
• Getting a Yes from the NHS
• Good Quality CBT with ERP
• I am a parent of a young child
• Making the Most of Therapy
• Medication for OCD
• Obsessive-Compulsive Disorder
• Preparing for a GP Appointment
• Primary Care for Adults
• Reassurance seeking
• Secondary Care for Adult
• Student Space: Management and Keeping Well
• Support at University
• Support for Families and Carers
• Treatment Options
• Treatments Not Recommended for OCD
• What to Look for in a Therapist
• Your Journey through the NHS

We hope you find this helpful!

Forum Moderators

[Forum Moderators]

Hello:

We’d also like you to know about this additional support OCD Action offers for you.

OCD Action Support Groups

Online Support Groups:

• Provide a safe and welcoming environment
• Allow you to connect with others and offer mutual support without judgement
• Are all peer led, assisted by a team of trained volunteers.

Who can join?

Anyone based in the UK and living with and/or affected by OCD or a related condition including:

• People who have these conditions, whether diagnosed or not
• Their parents, caregivers, partners and loved ones
• Students aged up to 25 in college / university/ other educational institutions
• Young people aged 16 – 17
• Young people aged 18 – 25

Types of groups

OCD Action offers specialised groups including:

• Pure O – General\Pure O – Intrusive Harm Thoughts
• Pure O – Scrupulosity & Morality
• Checking OCD
• Contamination OCD
• Perinatal OCD
• LGBTQ+ OCD
• Men’s OCD
• OCD for People of Colour
• BDD
• OCD & Autism
• OCD & Hoarding

What important details do I need to know?

• You can sign-up to a maximum of two groups initially. After attending at least once, you’re welcome to sign-up to another group
• Participation is easily accessible via Zoom, or
• If you don’t have internet access, we have a few phone support group places
• There is no charge to join
• Because of the high demand, please only sign up if you intend to use your place(s)
• To retain membership, you must attend a session at least once every three months

What are Navigating Services sessions?

As a Support Group member, you’ll be automatically be invited to monthly Navigating Services Sessions. Attendance is optional, and you’re free to opt out of the session mailing list at any time.

Led by our Helpline team, these sessions include:

• Information and support on accessing recommended treatments through the NHS and/or privately
• Opportunities to share lived experience of accessing support (for attendees or others)
• Answers to questions/concerns regarding recommended treatments and/or service provision

Want to know more about Support Groups?

For more information before you sign up:

• Email sign-up@ebtsupportgroups.co.uk
• Call 020 7253 5272
• See our website: https://ocdaction.org.uk/online-support-groups/

[Forum Moderators]

Other OCD-Related Support Services – Find Out More!

In addition to OCD Action, other organisations provide useful, reliable and relevant support for people with OCD and OCD-related conditions and their friends, families and carers. Find out more on our Resources page: https://ocdaction.org.uk/resources/

These are just some of the many organisations:

Maternal OCD: They provide help for women with perinatal obsessive compulsive disorder (OCD), a debilitating anxiety disorder, which is treatable. Maternal OCD’s aims are to:

• Raise awareness of perinatal OCD to healthcare professionals, mums to be/new mums, researchers and national decision-makers
• Provide information and support to mums and their families
• Encourage and support perinatal OCD research

BDD Foundation: Provides support for people with Body Dysmorphic Disorder (BDD), a preoccupation with perceived defects/flaws in appearance, often cause excessive self-consciousness. The Foundation:

• explains that BDD is a treatable condition and how, with the right help, recovery is very possible.
• provides information on support and treatment services available to UK residents
• recognises that the BDD community is worldwide. They encourage everyone to seek help and support through online services that can be accessed anywhere.

Asto Clinics: Asto is a UK charity providing treatment based on what works for individuals living with OCD. Asto’s founder, Steve Turnock, suffered from severe OCD and is aware of how life-changing the right support can be.

International OCD Foundation: The IOCDF is a large nonprofit serving the OCD community world-wide, including family members and health professionals. The IOCDF is known for:

• Their mission – to ensure that no one affected by OCD and related disorders is alone. Their community provides help, healing and hope.
• Their vision – that everyone impacted by OCD and related disorders has access to effective treatment and support.
• Their work – providing up-to-date education and resources, quality professional training, and advancing research.

[Author]

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