Best to keep quiet about OCD?

[johnysteynParticipant]

Hi I was diagnosed with OCD 10 years ago and me and my family thought it was best to keep quiet about it. But now, I find the more I open up to people about having it, the more likely they are to understand me and be kind. My parents disagree.

Who is right about this, me or my parents?

[OCDandmeParticipant]

I would say it depends on the individual. If you know them well enough to feel comfortable telling them then you would hopefully know them well enough to gauge what their reaction will be.

I’d say select the people you tell rather than broadcast it. Tell the ones you know will enhance your situation.

[Forum Moderators]

Forum Moderators here:

Thanks very much for posting on the forums. We just want to remind you that you’re never alone and OCD Action is here to support you.

Please remember, if you’d like to talk to or email someone who understands OCD, please contact our OCD Action Helpline.

You can get confidential information about and support from a Helpline volunteer who understands how OCD can impact your life. Contact our Helpline by:

• phone: 0300 636 5478
• email: support@ocdaction.org.uk

We hope this is helpful,

Forum Moderators

[Forum Moderators]

Hi:

Forum Moderators here – just checking in, as it’s been a while since we replied to your topic.

We want to be sure you know that, in addition to contacting the OCD Action Helpline and Email Service, you can visit our website’s Resources page: https://ocdaction.org.uk/resources/

You’ll find lots of helpful web-based resources on topics such as:

• An introduction to OCD
• Assessment and Diagnosis
• Body Dysmorphic Disorder
• Cognitive Behavioural Therapy with Exposure and Response Prevention
• Funding specialist treatment
• Getting a Yes from the NHS
• Good Quality CBT with ERP
• I am a parent of a young child
• Making the Most of Therapy
• Medication for OCD
• Obsessive-Compulsive Disorder
• Preparing for a GP Appointment
• Primary Care for Adults
• Reassurance seeking
• Secondary Care for Adults
• Specialist Treatment for OCD and BDD
• Student Space: Management and Keeping Well
• Support at University
• Support for Families and Carers
• Treatment Options
• Treatments Not Recommended for OCD
• What to Look for in a Therapist
• Your Journey through the NHS

We hope you find these resources useful!

[Forum Moderators]

Hello:

We’d also like you to know about this additional support OCD Action offers for you.

OCD Action Support Groups

Online Support Groups:

• Provide a safe and welcoming environment
• Allow you to connect with others and offer mutual support without judgement
• Are all peer led, assisted by a team of trained volunteers.

Who can join?

Anyone based in the UK and living with and/or affected by OCD or a related condition including:

• People who have these conditions, whether diagnosed or not
• Their parents, caregivers, partners and loved ones
• Students aged up to 25 in college / university/ other educational institutions
• Young people aged 16 – 17
• Young people aged 18 – 25

Types of groups

OCD Action offers specialised groups including:

• Pure O – General\Pure O – Intrusive Harm Thoughts
• Pure O – Scrupulosity & Morality
• Checking OCD
• Contamination OCD
• Perinatal OCD
• LGBTQ+ OCD
• Men’s OCD
• OCD for People of Colour
• BDD
• OCD & Autism
• OCD & Hoarding

What important details do I need to know?

• You can sign-up to a maximum of two groups initially. After attending at least once, you’re welcome to sign-up to another group
• Participation is easily accessible via Zoom, or
• If you don’t have internet access, we have a few phone support group places
• There is no charge to join
• Because of the high demand, please only sign up if you intend to use your place(s)
• To retain membership, you must attend a session at least once every three months

What are Navigating Services sessions?

As a Support Group member, you’ll be automatically be invited to monthly Navigating Services Sessions. Attendance is optional, and you’re free to opt out of the session mailing list at any time.

Led by our Helpline team, these sessions include:

• Information and support on accessing recommended treatments through the NHS and/or privately
• Opportunities to share lived experience of accessing support (for attendees or others)
• Answers to questions/concerns regarding recommended treatments and/or service provision

Want to know more about Support Groups?

For more information before you sign up:

• Email sign-up@ebtsupportgroups.co.uk
• Call 020 7253 5272
• See our website: https://ocdaction.org.uk/online-support-groups/

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