Want To Share Your OCD Story Publicly?
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23 July 2025 at 23:49 #36343Forum Moderators
OCD still isn’t taken seriously. Help us to change that
From benefit reforms that overlook long-term mental health conditions to systems that misdiagnose, dismiss, or delay treatment, it’s clear OCD still isn’t taken seriously.OCD Action is sharing real stories from people with OCD about what happens when their experiences are dismissed and overlooked. Visit our Facebook page to read more:
Want to Share with Others? Share Your Story: OCD Awareness Campaign
Interested in sharing your story?
We know it’s not always easy to speak up, but personal experiences can be powerful tools for change.
If you’ve been misdiagnosed, left waiting, or struggled to be taken seriously because of your OCD — and you’d be open to sharing your experience publicly — you can tell us a bit about it by clicking on the link below.
If you’ve experienced this too — and you feel able to share your story publicly — you can do so here: bit.ly/3FVlmwp12 January 2026 at 23:51 #37972Forum ModeratorsOther OCD-Related Support Services – Find Out More!
In addition to OCD Action, other organisations provide useful, reliable and relevant support for people with OCD and OCD-related conditions and their friends, families and carers. Find out more on our Resources page: https://ocdaction.org.uk/resources/
These are just some of the many organisations:
Maternal OCD: They provide help for women with perinatal obsessive compulsive disorder (OCD), a debilitating anxiety disorder, which is treatable. Maternal OCD’s aims are to:
- Raise awareness of perinatal OCD to healthcare professionals, mums to be/new mums, researchers and national decision-makers
- Provide information and support to mums and their families
- Encourage and support perinatal OCD research
BDD Foundation: Provides support for people with Body Dysmorphic Disorder (BDD), a preoccupation with perceived defects/flaws in appearance, often cause excessive self-consciousness. The Foundation:
- explains that BDD is a treatable condition and how, with the right help, recovery is very possible.
- provides information on support and treatment services available to UK residents
- recognises that the BDD community is worldwide. They encourage everyone to seek help and support through online services that can be accessed anywhere.
Asto Clinics: Asto is a UK charity providing treatment based on what works for individuals living with OCD. Asto’s founder, Steve Turnock, suffered from severe OCD and is aware of how life-changing the right support can be.
International OCD Foundation: The IOCDF is a large nonprofit serving the OCD community world-wide, including family members and health professionals. The IOCDF is known for:
- Their mission – to ensure that no one affected by OCD and related disorders is alone. Their community provides help, healing and hope.
- Their vision – that everyone impacted by OCD and related disorders has access to effective treatment and support.
- Their work – providing up-to-date education and resources, quality professional training, and advancing research.
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