Your diagnosis story

[NorthernHParticipant]

Hello! First time poster here.

My question is about how anyone here went about getting a diagnosis, specifically in the UK.

I have seen a couple of therapists who believe I have all of the signs pointing to OCD, but they are unable to give an official diagnosis. I am currently having CBT through IAPT that is specifically for treating OCD. You might ask why I would want a diagnosis if I’m already getting treatment but it really is all about peace of mind and having that confirmation.

Unfortunately my GP isn’t the easiest to get ahold of, especially now, so I just wanted to ask for future reference how you went about getting a diagnosis? And what was the process like? (time-wise, emotionally etc.)

[Forum Moderators]

Hi:

Forum Moderators here – just checking in, as it’s been a while since you posted your topic.

One of the biggest barriers people face with accessing treatment for their OCD is lack of recognition of their symptoms. Someone might not be completely open about them to professionals because they are embarrassed, or the assessor themselves might not be aware of the different ways OCD can manifest. Taking part in an assessment with a knowledgeable practitioner and with some preparation can help to open doors to the right support. For more see:

• Assessment and Diagnosi

We want to be sure you know that,  addition to this you can contact the OCD Action Helpline and Email Service, you can visit our website’s Resources page: https://ocdaction.org.uk/resources/

You’ll find lots of helpful web-based resources on topics such as:

• An introduction to OCD
• Assessment and Diagnosi
• Cognitive Behavioural Therapy with Exposure and Response Prevention
• Funding specialist treatment
• Getting a Yes from the NHS
• Good Quality CBT with ERP
• Making the Most of Therapy
• Medication for OCD
• Obsessive-Compulsive Disorder
• Preparing for a GP Appointment
• Primary Care for Adults
• Reassurance seeking
• Secondary Care for Adult
• Support for Families and Carers
• Treatment Options
• Treatments Not Recommended for OCD
• What to Look for in a Therapist
• Your Journey through the NHS

We hope you find this helpful!

Forum Moderators

[Forum Moderators]

Hello:

We’d also like you to know about this additional support OCD Action offers for you.

OCD Action Support Groups

Online Support Groups:

• Provide a safe and welcoming environment
• Allow you to connect with others and offer mutual support without judgement
• Are all peer led, assisted by a team of trained volunteers.

Who can join?

Anyone based in the UK and living with and/or affected by OCD or a related condition including:

• People who have these conditions, whether diagnosed or not
• Their parents, caregivers, partners and loved ones
• Students aged up to 25 in college / university/ other educational institutions
• Young people aged 16 – 17
• Young people aged 18 – 25

Types of groups

OCD Action offers specialised groups including:

• Pure O – General\Pure O – Intrusive Harm Thoughts
• Pure O – Scrupulosity & Morality
• Checking OCD
• Contamination OCD
• Perinatal OCD
• LGBTQ+ OCD
• Men’s OCD
• OCD for People of Colour
• BDD
• OCD & Autism
• OCD & Hoarding

What important details do I need to know?

• You can sign-up to a maximum of two groups initially. After attending at least once, you’re welcome to sign-up to another group
• Participation is easily accessible via Zoom, or
• If you don’t have internet access, we have a few phone support group places
• There is no charge to join
• Because of the high demand, please only sign up if you intend to use your place(s)
• To retain membership, you must attend a session at least once every three months

What are Navigating Services sessions?

As a Support Group member, you’ll be automatically be invited to monthly Navigating Services Sessions. Attendance is optional, and you’re free to opt out of the session mailing list at any time.

Led by our Helpline team, these sessions include:

• Information and support on accessing recommended treatments through the NHS and/or privately
• Opportunities to share lived experience of accessing support (for attendees or others)
• Answers to questions/concerns regarding recommended treatments and/or service provision

Want to know more about Support Groups?

For more information before you sign up:

• Email sign-up@ebtsupportgroups.co.uk
• Call 020 7253 5272
• See our website: https://ocdaction.org.uk/online-support-groups/

[Author]

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